Yesterday, the Sjogren's Syndrome Foundation put up a status on facebook which linked to an excellent video. Entitled "Sjogren's Syndrome: A Place To Begin", it's a great informational tool for newly diagnosed sjoggies, their families, and friends. It can also be found on the Sjogren's Syndrome foundation site, here. This 25 minute video is a compilation of an earlier series of six videos on YouTube, found here.
It was interesting to me to note the large amount of discussion and time spent in this video discussing the fatigue and brain fog issues associated with Sjogren's syndrome.
Yesssss. These people GET IT.
For most of us, it's not just dry mouth and dry eyes, people. Pour yourself a cuppa and pull up a chair to watch this really well done video.
1 comment:
Thanks! Why is the doc checking this woman's fingertips with a light? MY rheumie NEVER touches me! This patient is having her mouth and eyes checked, and even her skin! Amazing! I need to change docs! But I AM curious as to thy the fingertips are being examined! Thank you!
Post a Comment