I was shocked to hear about this as well yesterday. I have been reading a lot of comments on Sjogren's sites about how people feel this will be great for the illness, bringing awareness to the public. Although I agree with that, I think as fellow Sjogren's sufferers we should step back and respect what this woman is dealing with right now and give her some time to breathe and figure out her next move with her doctors.
There was a close up picture of her at the Open, and I thought she looked exhausted and ill, and she looked as though she had aged tremendously.Now I know why. I do feel sorry for her because life will not be the same, and although she is positive she will be playing, I seriously doubt she can keep up the level of competitiveness without seriously damaging her health more.
Her interview on Good Morning America was very good. They didn't downplay the disease at all. Her dry eye and dry mouth issues were secondary to the other life altering symptoms. I think people hear dry eyes and mouth and think "big deal".
I hate to see anyone diagnosed with this awful thing. On the other hand we sure have a power house "face" for Sjogrens.
She said that she was diagnosed a couple weeks ago but has been effected for years. She knew she couldn't play when she couldn't even lift her racket. My heart sank for her.
I have found so much helpful information here... thank you. I am having another day where I just don't feel like doing any of the things I would like to be doing.
I came across an article about diet... and omitting grains??? What is your opinion on this. How important is diet and Sjogren's?? Also for weight loss and retaining muscle I started a protein drink every morning... 100% Whey protein. Could this be making me feel worse? Do you think? I need to make a list for my next doctor visit... but being so new at this... I need all the help I can get.
A Body Out of Balance by Nancy Carteron and Ruth Fremes
A Delicate Balance - Living Successfully With Chronic Illness by Susan Milstrey Wells
In Defense of Food by Michael Pollan
Peripheral Neuropathy - When The Numbness, Weakness, and Pain Won't Stop by Norman Latov, MD, PhD
The Autoimmune Connection by Rita Baron-Faust and Jill P. Buyon, M.D.
The Balance Within - The Science Connecting Health and Emotions by Esther M. Sternberg, M.D.
The New Sjogren's Syndrome Handbook (Sjogren's Syndrome Foundation) by Daniel J. Wallace
The Sjogren's Syndrome Survival Guide by Terri P. Rumph Ph.D, and Katherine Morland Hammitt
You Don't Look Sick - Living Well with Invisible Chronic Illness by Joy H. Selak and Steven S. Overman, MD, MPH
Information on this blog is not intended as medical advice. Always check with your healthcare provider before taking any medications, vitamins, or supplements; before beginning exercise programs, or making changes in your health care practices.
6 comments:
I was shocked to hear about this as well yesterday. I have been reading a lot of comments on Sjogren's sites about how people feel this will be great for the illness, bringing awareness to the public. Although I agree with that, I think as fellow Sjogren's sufferers we should step back and respect what this woman is dealing with right now and give her some time to breathe and figure out her next move with her doctors.
Gee it would be even harder to be her... and so young. Wow!
ToOdLeS.
There was a close up picture of her at the Open, and I thought she looked exhausted and ill, and she looked as though she had aged tremendously.Now I know why. I do feel sorry for her because life will not be the same, and although she is positive she will be playing, I seriously doubt she can keep up the level of competitiveness without seriously damaging her health more.
Her interview on Good Morning America was very good. They didn't downplay the disease at all. Her dry eye and dry mouth issues were secondary to the other life altering symptoms. I think people hear dry eyes and mouth and think "big deal".
I hate to see anyone diagnosed with this awful thing. On the other hand we sure have a power house "face" for Sjogrens.
She said that she was diagnosed a couple weeks ago but has been effected for years. She knew she couldn't play when she couldn't even lift her racket. My heart sank for her.
Me again...
I have found so much helpful information here... thank you. I am having another day where I just don't feel like doing any of the things I would like to be doing.
I came across an article about diet... and omitting grains??? What is your opinion on this. How important is diet and Sjogren's??
Also for weight loss and retaining muscle I started a protein drink every morning... 100% Whey protein. Could this be making me feel worse? Do you think? I need to make a list for my next doctor visit... but being so new at this... I need all the help I can get.
ToOdLeS.
I'm sorry for her, like I said: I will not give this illness to my worst ennemy.
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