This from the April update for the Sjogren's Syndrome Foundation:
Social Security Administration
"On behalf of the SSF, Baltimore Support Group Leader Eva Plude recently testified in front of the Social Security Administration's Compassionate Allowances Outreach Hearing on Autoimmune Diseases.
Eva did a wonderful job detailing her struggle to be diagnosed, the difficulties of living with Sjogren's, as well as how disabling the disease can be.
Her written testimony also was submitted to the SSA as part of their extensive consideration of autoimmune diseases needing "Compassionate Allowances" for social security disability, and the SSA copied and distributed her testimony to attendees at the hearing.
Other Sjogren's volunteers were in attendance and we are excited for the opportunity to once again talk with the government about just how debillitating Sjogren's can be."
You can read Eva's excellent written testimony here.
No comments:
Post a Comment