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Reasonably Well by Julia is licensed under a Creative Commons Attribution-No Derivative Works 3.0 Unported License.
Living Well With Sjogren's Syndrome
Hi There!
If we need to talk....
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juliaschulia (at) gmail (dot) com
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Blog Archive
Reasonably Informative Posts:
- Approved Fatigue
- Autoimmune Disease and Carpal Tunnel Syndrome
- Autoimmune Labs 101
- Before it all Went Wrong: Normal Immune Systems
- Chronic Illness and Depression
- Chronic Illness and Friendship
- Coping Skills
- Dr. Sarah Schafer: A Sjogren's Bibliography for Your Physician
- Dr. Sarah Schafer: Exercise and Sjogren's Syndrome
- Dr. Sarah Schafer: Important New Sjogrens Website
- Dr. Sarah Schafer: Part One: Managing Sjogren's Fatigue
- Dr. Sarah Schafer: Part Three: Managing Sjogren's Fatigue
- Dr. Sarah Schafer: Part Two: Managing Sjogren's Fatigue
- Gastrointestinal Effects of Sjogren's Syndrome
- Glandular and Extraglandular Manifestations of Sjogren's Syndrome
- Greetings
- Look Who I Found! Amy's Diagnosis Story
- Maintenance Labwork for Sjogren's Syndrome
- Neurological Complications of Sjogren's: Dr. Julius Birnbaum
- Oral Care Products as Recommended by a Dental Hygienist
- Plaquenil Retinopathy
- Prednisone and Sjogren's Syndrome
- Show Me The List: Sjogren's Syndrome Centers
- Sjogren's and Raynaud's Syndrome
- Sjogren's and Sleep
- Sjogren's Diagnosis: Your Results May Vary
- Sjogren's Syndrome and Gastroesophageal Reflux Disease
- Sjogren's Syndrome and Headaches
- Sjogren's Syndrome and Hearing
- Sjogren's Syndrome and Hyoposmia
- Sjogren's Syndrome and Interstitial Lung Disease
- Sjogren's Syndrome and Kidney Disease
- Sjogren's Syndrome and Peripheral Neuropathy
- Sjogren's Syndrome and Sex
- Sjogren's Syndrome and Travel
- Sjogren's Syndrome and Trigeminal Neuralgia
- Sjogren's Syndrome Explained by Scripps
- Sjogren's Syndrome Foundation Education Sheet: Insurance Reimbursement Tips for Dental Care
- Sjogren's Syndrome Foundation Fact Sheet: Brain Fog
- Sjogren's Syndrome Foundation Fact Sheet: Fighting Fatigue
- Sjogren's Syndrome Foundation Fact Sheet: How to Massage Salivary Glands
- Sjogren's Syndrome Foundation Fact Sheet: Rheumatoid Arthritis and Sjogren's Syndrome
- Sjogren's Syndrome Foundation Fact Sheet: Tips for Brittle Nails
- Sjogren's Syndrome Foundation Fact Sheet: Tips on Obtaining Disability Benefits
- Sjogren's Syndrome Foundation Patient Education Sheet; Oral Candidiasis (Thrush) in Sjogren's
- Sjogren's Syndrome Foundation Patient Education Sheet: Anti-Inflammatory Diet
- Sjogren's Syndrome Foundation Patient Education Sheet: Difficulty Swallowing
- Sjogren's Syndrome Foundation Patient Education Sheet: Health Insurance Tips - Part 2
- Sjogren's Syndrome Foundation Patient Education Sheet: Health Insurance Tips -- Part 1
- Sjogren's Syndrome Foundation Patient Education Sheet: Muscle and Joint Pain in Sjogren's
- Sjogren's Syndrome Foundation Patient Education sheet: Simple Solutions for Dry Eye
- Sjogren's Syndrome Foundation Patient Education Sheet: Simple Solutions for Treating Dry Mouth
- Sjogren's Syndrome Foundation Patient Education Sheets: Eating Tips for Dry Mouth Patients
- Sjogren's Syndrome Foundation: The Sun and Sjogren's Syndrome
- Sjogren's Syndrome Foundation: Tracking Your Sjogren's Symptoms Work Sheet
- Sjogren's Syndrome Pharmacology
- Sjogren's VS Saliva
- SSF: Patient Education Sheet Sjogren's and Pulmonary Issues
- SSF: Sjogren's Pulmonary Clinics USA
- SSF: Treating Sjogren's - The Future
- Stress and Saliva
- Summertime Sjogren's
- Tears 101
- Tears Part Two
- The Skinny on Autoimmune Skin
- THIS is My Sjogren's Brain
- Treatment of Peripheral Neuropathy in Sjogren's Syndrome
- Vitamins, Supplements, and Sjogren's Syndrome
Links
- 710.9
- American Autoimmune Related Diseases Association
- As My Body Attacks Itself
- Autoimmune Gal
- Falling With Grace
- Here's Your Gold Watch - Rheutired
- Johns Hopkins Jerome L. Greene Sjogren's Syndrome Center
- My Journey To Mindfulness
- My Odd Sock
- National Institutes of Health: Clinical Studies Search
- NIAMS: Understanding Autoimmune Diseases
- Orb Weaver
- Our Time In Juvie
- Seattle Mariners Baseball
- Sjodry & Parched
- Sjoggie StAHMer
- Sjogren's Forum - Living Well With Sjogren's
- Sjogren's Syndrome Foundation
- Sjogren's Syndrome Foundation: Here's a Place to Begin
- Sjogren's World
- sjogrens blog -- pronounced show grins (but i'm not grinning)
- Sjogrensadvocate.com
- SjogrensLife
- Thoughts and Ramblings on Life, Love, and Health
- UII - Understanding Invisible Illnesses
- United States Social Security Disability Guide
- Vivre Avec Le Syndrome De Sjogren / A Sjogren's Life
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Followers
Recommended Reading
- A Body Out of Balance by Nancy Carteron and Ruth Fremes
- A Delicate Balance - Living Successfully With Chronic Illness by Susan Milstrey Wells
- In Defense of Food by Michael Pollan
- Peripheral Neuropathy - When The Numbness, Weakness, and Pain Won't Stop by Norman Latov, MD, PhD
- The Autoimmune Connection by Rita Baron-Faust and Jill P. Buyon, M.D.
- The Balance Within - The Science Connecting Health and Emotions by Esther M. Sternberg, M.D.
- The New Sjogren's Syndrome Handbook (Sjogren's Syndrome Foundation) by Daniel J. Wallace
- The Sjogren's Syndrome Survival Guide by Terri P. Rumph Ph.D, and Katherine Morland Hammitt
- You Don't Look Sick - Living Well with Invisible Chronic Illness by Joy H. Selak and Steven S. Overman, MD, MPH
Information on this blog is not intended as medical advice. Always check with your healthcare provider before taking any medications, vitamins, or supplements; before beginning exercise programs, or making changes in your health care practices.
Reasonably Well by Julia is licensed under a Creative Commons Attribution-No Derivative Works 3.0 Unported License.
6 comments:
I just love seeing pics of pets. They make life so much more bearable !
(I promise I'll post mine soon)
Very cute!!! Love the picture of Mt. Hood.
I came to this blog because of Sjogren's. I have been diagnosed with it for almost 4 years now. It has affected my kidneys to the point that I have stage IV chronic Kidney Disease. I am scared that I will be put on dialysis in the next couple of years. I am being put on Procrit injections. Have you had to do this or know someone that Sjogrens has affected their kidneys badly?
Hi Vicky,
Thanks for visiting. I'm sorry that you are having kidney problems! At this point, my Sjogren's is not affecting my kidneys, but it definitely is an issue for some.
The most common kidney problem related to Sjogren's Syndrome is Renal Tubular Acidosis. You can read more about RTA here:
http://kidney.niddk.nih.gov/kudiseases/pubs/tubularacidosis/
The Procrit is prescribed to boost your body's ability to make red blood cells, since in some kidney diseases, your red blood cell levels drop.
There are several other ways that autoimmune disease can impact your kidney function.
Please keep me posted as to how you are doing!
Julia
Thanks for the info. I am very familiar with acidosis and have had a renal biopsy done. I take 6 sodium bi-carb pills a day. I appreciate your interest and hope there may be someone else going through the kidney problems associated with Sjogrens. I feel alone and just wish for a glimmer of hope to beat this disease.
I wish I could offer you more than prayers and best wishes for you, Vicky! Please know that I am thinking of you.
One of my previous jobs as a RN was as a dialysis nurse. I understand your anxiety and concern about having to rely on dialysis. My experience was many years ago, so my expertise is very dated.
Keep in touch!
I added you to my favorites list AKA stalking list on my new blog. :) I will keep in touch. Thanks!
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